A middle-aged man diagnosed with ALS, who lost his voice to the disease, is now preparing to open his third home dedicated to helping others facing the same devastating condition. Despite his silent struggle, he continues to lead efforts to provide care and support to ALS patients, driven by a deep passion to make a difference.
In a heartfelt message, he shared how last year, during his marathon fundraiser, he was overwhelmed by the success of the event. Many thought his speechlessness was due to emotion, but in reality, it marked the beginning of his battle with losing his voice. Now, completely voiceless, he remains undeterred in his mission to help others, organizing his ninth marathon to raise funds for DAR Bjorn Respite, the third home in his growing network of care facilities.
Over the past nine years, his marathons have raised significant funds, resulting in two homes that have provided therapy, counseling, and support to thousands of ALS patients. DAR Bjorn Respite will offer temporary relief to patients and their families, giving them a safe place to turn to in times of need.
Though ALS has taken his voice and weakened his body, his determination remains stronger than ever. He calls on the public to support his upcoming marathon on September 22, to help continue his vital work—one that he vows to pursue until his last breath.
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