Ruth Debono, a fibromyalgia and M/E activist, took to Facebook to share the amount of medication she has to take in order to function and live as close to a normal life as possible. In the post, she urges the government to help out people with this condition more and not treat it like an invisible disability anymore.
In the post, Debono shared a picture of around 15 medications she takes in order to help her live. The picture also did not include certain sleep medications, heat balms and various other medications needed. She revealed that the price for all this medication is €150, as only three intense medications are given by the government; Amitriptyline, Pragiola and Tramadol. These medications can’t be taken by just anyone as they have very dangerous side-effects.
This issue has been long ongoing as countless Fibromyalgia sufferers have been calling on the government to help them out more financially and recognise their condition as a disability with medications that can be very expensive for certain people.
Debono, who is also the CEO of the ME/CFS and Fibromyalgia Alliance, spoke about what is needed from the government – saying “What we need is financial aid: disability benefits, therapy long term, home help, vouchers for food allergies, vouchers for treatments like acupuncture, pool therapy, physiotherapy etc.”
Earlier this week and following Pride Week, PN MP Alex Borg also called on the government to take action on this issue as he questioned the government’s health budget priorities, as he saw that the main priority was that of sex reassignment surgery for trans people being made free of charge. He stated that he agrees with the government’s priority of free sex reassignment surgery but stressed that helping out people suffering from these invisible disabilities such as fibromyalgia should take priority.
Borg’s statements were met with some criticism by LGBTIQ+ activists and Parliamentary Secretary Rebecca Buttigieg, who pointed out that free gender reassignment therapy would not come at the expense of making such medication also free.
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